IBD Nurses Report on an Ipad

IBD Nurse-Centred Care Impact Report

CDHF

Written by: CDHF

Updated: November 29th, 2022

Inflammatory bowel disease (IBD) is an umbrella term that includes ulcerative colitis (UC) and Crohn’s disease (CD), affects all or part of the digestive tract. It has an enormous impact on affected people, and Canada has one of the highest rates of IBD in the world. While we continue to make strides in treatment, we have not kept pace with the world’s best practices. IBD patients need us to do better.

This report grew out of an increasing awareness, supported by global clinical experience and guidelines, that Canada could provide significantly better care to IBD patients. There is a particular need and opportunity to expand the use of nurses with special training in IBD, who are currently not being used to their full potential. These nurses provide high value across several dimensions of IBD care, and studies continue to show that an enhanced role for IBD nurses improves the quality, outcomes, and cost-effectiveness of care.

To capture the value of IBD nurses and identify gaps in how this resource is being used in Canada, the Canadian Digestive Health Foundation (CDHF) conducted in-depth surveys and interviews with four groups of IBD stakeholders: nurses, gastroenterologists, patients, and caregivers.

This report summarizes the findings from this original research, presents relevant literature from other parts of the world, and makes recommendations for a national strategy to improve IBD care that includes an enhanced role for IBD nurses.

IBD prevalence & impact

IBD care gaps in Canada

IBD nurses in Canada: feedback from stakeholders

Experience and evidence from other jurisdictions

Rationale and recommendations for a national strategy

These recommendations will enhance IBD care across Canada, while making judicious use of our health-system resources. Most importantly, a national strategy based on these recommendations will improve the quality of life for the large community of people with IBD, enabling them to live and participate in society to their full potential.


References

  1. Crohn’s & Colitis Canada. 2018 impact of IBD in Canada. https://crohnsandcolitis.ca/Crohns_and_Colitis/documents/reports/2018-Impact-Report-LR.pdf

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