{"id":57816,"date":"2024-09-18T14:54:13","date_gmt":"2024-09-18T14:54:13","guid":{"rendered":"https:\/\/cdhf.staging.not4prod.com\/?p=57816"},"modified":"2025-02-18T14:13:17","modified_gmt":"2025-02-18T14:13:17","slug":"cdhfs-my-ibd-journal","status":"publish","type":"post","link":"https:\/\/cdhf.ca\/en\/cdhfs-my-ibd-journal\/","title":{"rendered":"CDHF\u2019s My IBD Journal\u00a0"},"content":{"rendered":"\n\n\n<p class=\"wp-block-paragraph\">The Canadian Digestive Health Foundation, in partnership with Organon, is excited to present My IBD Journal \u2014 an online journaling tool designed to help adolescents and young adults with Inflammatory Bowel Disease (IBD) manage their health as they transition from pediatric to adult care. This secure platform allows you to take control of your healthcare journey by maintaining a detailed, private record of your medical history and personal experiences with IBD. With My IBD Journal, you can continuously update your information or create multiple journals to reflect changes in your health over time.<\/p>\n\n\n<div style=\"gap: 20px\" class=\"align-button-center ub-buttons orientation-button-row ub-flex-wrap wp-block-ub-button\" id=\"ub-button-d60d675d-909c-40b4-8848-91962c1aa0f9\"><div class=\"ub-button-container\">\n\t\t\t<a href=\"https:\/\/my-ibd-journal.cdhf.ca\/\" target=\"_blank\" rel=\"noopener noreferrer\" class=\"ub-button-block-main   ub-button-flex\" role=\"button\" style=\"--ub-button-background-color: #452d86; --ub-button-color: #ffffff; --ub-button-border: none; --ub-button-hover-background-color: #313131; --ub-button-hover-color: #ffffff; --ub-button-hover-border: none; padding-top: 10px; padding-right: 10px; padding-bottom: 10px; padding-left: 10px; border-top-left-radius: 10px;; border-top-right-radius: 10px;; border-bottom-left-radius: 10px;; border-bottom-right-radius: 10px;; \">\n\t\t\t\t<div class=\"ub-button-content-holder\" style=\"flex-direction: row\">\n\t\t\t\t\t<span class=\"ub-button-block-btn\">Go to My IBD Journal<\/span>\n\t\t\t\t<\/div>\n\t\t\t<\/a>\n\t\t<\/div><\/div>\n\n\n<h2 class=\"wp-block-heading\">What is IBD?<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Inflammatory Bowel Disease (IBD) is a term used to describe a group of chronic conditions characterized by inflammation of the digestive tract. The two main types of IBD are <a href=\"https:\/\/cdhf.ca\/en\/digestive-conditions\/ibd-ulcerative-colitis\/\">ulcerative colitis <\/a>(UC) and <a href=\"https:\/\/cdhf.ca\/en\/digestive-conditions\/ibd-crohns-disease\/\">Crohn&#8217;s Disease.<\/a><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Ulcerative colitis primarily affects the colon (large intestine) and rectum, causing inflammation and sores (ulcers) along the lining. Symptoms often include abdominal pain, cramping, diarrhea (often with blood or mucus), and an urgent need to have a bowel movement. UC usually begins in the rectal area and may spread continuously to involve more of the colon over time.<\/li>\n\n\n\n<li>Crohn&#8217;s Disease can affect any part of the digestive tract, from the mouth to the anus, but most commonly impacts the end of the small intestine (the ileum) and the beginning of the colon. Unlike UC, Crohn&#8217;s can affect the entire thickness of the bowel wall and may cause patchy areas of inflammation. Symptoms can include abdominal pain, diarrhea, fatigue, weight loss, and malnutrition.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">While UC and Crohn\u2019s Disease share some similarities, they differ in their location and the way they affect the digestive tract. Managing these conditions often requires a combination of medication, diet, and lifestyle changes, along with regular monitoring by healthcare professionals.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Why Use My IBD Journal?<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">My IBD Journal is an online platform designed to support adolescents and young adults with Inflammatory Bowel Disease (IBD) as they transition from pediatric to adult care. This tool empowers users to take charge of their healthcare by offering a secure and accessible way to maintain a detailed record of their medical history and personal experiences with IBD. With My IBD Journal, you can continuously update your information or create multiple journals, reflecting the evolution of your healthcare journey over time.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">My IBD Journal offers a variety of features to help you stay on top of your health:<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Question and Answer Format<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Journaling your health history is made easy by asking you specific questions that help you remember and journal your IBD experience. Try asking your parent, guardian, and healthcare provider to help you fill in your journal.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Private and Secure Cloud Storage<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Rest assured your information is safe and secure. My IBD Journal stores your information encrypted so only you can view it. We use two-factor authentication and a QR code-based key system to keep your data private and secure.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Instant Access<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">My IBD Journal is ready when you need it. You can login to access your journal any day at any time so you\u2019ll never have to worry. You can even download your journal as a PDF to print or share with your healthcare providers.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">How to Use my IBD Journal<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\">Create an Account<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Start by creating an account with your email and password to keep your documents secure. Select \u2018Create a New Journal\u2019 from the menu on the left-hand side of the webpage. To help keep your journals organized, you can give it a nickname so you can easily refer back to it.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture1.webp\" alt=\"myibd journal login\" class=\"wp-image-57827 lazyload\"\/><noscript><img decoding=\"async\" src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture1.webp\" alt=\"myibd journal login\" class=\"wp-image-57827 lazyload\"\/><\/noscript><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\">Document Your Health History:<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Use your My IBD Journal to keep an accurate documentation of your past and present health history to help you communicate better with your physicians. You can fill in your diagnosis, date of diagnosis, perianal involvement, associated gastrointestinal diseases, skin conditions, liver\/pancreas and joint issues.<\/p>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Overall Health and Wellness<\/strong><\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Understanding your general health and wellness can help you and your physicians understand and identify things that may impact your IBD outcomes. Take note of your height and weight, food and\/or medication allergies, food intolerances, and if you follow any specific diets.<\/p>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Family Health History<\/strong><\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Having a history of IBD in your family is an influential risk factor for developing IBD. Answer questions that will help your physician understand your family health history, including:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Do you have any immediate family members with IBD?<ul><li>Does anyone in your family have (or has had in the past) any of the following health conditions?<\/li><\/ul>\n<ul class=\"wp-block-list\">\n<li>Any other non-IBD related family medical history details you think are relevant<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Vaccination History<\/strong><\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">It\u2019s important to keep track of your vaccination history and that you provide this information to your doctors. This will make sure you remain up-to-date with your vaccinations. Here, you can fill out your most recent vaccination dates for Hepatitis A and B, COVID-19 among others.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Track Your Symptoms<\/h3>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Diagnosis History<\/strong><\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">This section of My IBD Journal will allow you to track when your IBD symptoms began, and the factors that led you to be diagnosed with IBD. Here you can describe the symptoms and events that led up to your diagnosis.<\/p>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Symptoms Experience<\/strong><\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Those diagnosed with Irritable Bowel Disease may experience symptoms unique to them. Help your doctor understand how they start and how you feel when they are occurring.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture2.webp\" alt=\"myibd journal symptoms experience\" class=\"wp-image-57817 lazyload\"\/><noscript><img decoding=\"async\" src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture2.webp\" alt=\"myibd journal symptoms experience\" class=\"wp-image-57817 lazyload\"\/><\/noscript><\/figure>\n\n\n<div style=\"gap: 20px\" class=\"align-button-center ub-buttons orientation-button-row ub-flex-wrap wp-block-ub-button\" id=\"ub-button-69558634-829d-4d8f-bb3e-6c87e4d20bf4\"><div class=\"ub-button-container\">\n\t\t\t<a href=\"https:\/\/my-ibd-journal.cdhf.ca\/\" target=\"_blank\" rel=\"noopener noreferrer\" class=\"ub-button-block-main   ub-button-flex\" role=\"button\" style=\"--ub-button-background-color: #452d86; --ub-button-color: #ffffff; --ub-button-border: none; --ub-button-hover-background-color: #313131; --ub-button-hover-color: #ffffff; --ub-button-hover-border: none; padding-top: 10px; padding-right: 10px; padding-bottom: 10px; padding-left: 10px; border-top-left-radius: 10px;; border-top-right-radius: 10px;; border-bottom-left-radius: 10px;; border-bottom-right-radius: 10px;; \">\n\t\t\t\t<div class=\"ub-button-content-holder\" style=\"flex-direction: row\">\n\t\t\t\t\t<span class=\"ub-button-block-btn\">Go to My IBD Journal<\/span>\n\t\t\t\t<\/div>\n\t\t\t<\/a>\n\t\t<\/div><\/div>\n\n\n<h3 class=\"wp-block-heading\"><strong>IBD Pain Experience<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">IBD symptoms can cause significant pain, but everyone feels the impacts of pain differently. Help your doctor understand how IBD pain impacts your life. In this section, you can describe the pain you experienced during your last flare up, track the time and how long the pain occurs, and impacts of lifestyle to IBD pain.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture3-1024x647.webp\" alt=\"myibd journal pain experience\" class=\"wp-image-57819 lazyload\"\/><noscript><img decoding=\"async\" src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture3-1024x647.webp\" alt=\"myibd journal pain experience\" class=\"wp-image-57819 lazyload\"\/><\/noscript><\/figure>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Ancillary Symptoms<\/strong><\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">There may be other symptoms that you experience that are related to your IBD. It&#8217;s important to understand the full spectrum symptoms that are impacted by your IBD. In this section of your journal, track:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Nausea and Vomiting<ul><li>Bowel Movements<\/li><\/ul>\n<ul class=\"wp-block-list\">\n<li>Other related symptoms including fever and joint pain<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">Log Your Investigations and Treatments<\/h3>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>IBD Investigation History<\/strong><\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Have you undergone any investigations for your IBD like endoscopy, colonoscopy, gastroscopy, MRE or chest x-rays? Record any relevant investigations and their findings in this section of your journal.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture4-1024x579.webp\" alt=\"myibd investigations history\" class=\"wp-image-57821 lazyload\"\/><noscript><img decoding=\"async\" src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture4-1024x579.webp\" alt=\"myibd investigations history\" class=\"wp-image-57821 lazyload\"\/><\/noscript><\/figure>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Surgery History<\/strong><\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Have you had any other surgeries that you should record? The surgeries or surgical procedures you track don\u2019t need to be IBD specific. You can keep a record any other surgeries you have had in this section.<\/p>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>IBD Treatment History<\/strong><\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">It\u2019s important for you to keep track of all the treatments and medications that you and your physicians\u2019 have tried to help improve your IBD. Understanding your treatment history will help your IBD health care team to recommend new approaches to treatment.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture5-1024x512.webp\" alt=\"myibd treatment history\" class=\"wp-image-57823 lazyload\"\/><noscript><img decoding=\"async\" src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture5-1024x512.webp\" alt=\"myibd treatment history\" class=\"wp-image-57823 lazyload\"\/><\/noscript><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\">&nbsp;Keep Important Contacts Handy:<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">It\u2019s a good idea to make sure that you have the contact information of your health care team handy. List the contact information for your personal, health care providers and pharmacies in this section.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture6-1024x735.webp\" alt=\"myibd contacts page\" class=\"wp-image-57825 lazyload\"\/><noscript><img decoding=\"async\" src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Picture6-1024x735.webp\" alt=\"myibd contacts page\" class=\"wp-image-57825 lazyload\"\/><\/noscript><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\">Download and Share Your Journal:<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Once you\u2019ve completed your journal, you can download a PDF of the journal to store on your smartphone or print a copy to give to your health care provider!<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Need Help? For any further questions, please reach out to info@cdhf.ca<\/strong><\/p>\n\n\n<div style=\"gap: 20px\" class=\"align-button-center ub-buttons orientation-button-row ub-flex-wrap wp-block-ub-button\" id=\"ub-button-b72a745d-7161-4f89-af5e-801ebe63a32f\"><div class=\"ub-button-container\">\n\t\t\t<a href=\"https:\/\/my-ibd-journal.cdhf.ca\/\" target=\"_blank\" rel=\"noopener noreferrer\" class=\"ub-button-block-main   ub-button-flex\" role=\"button\" style=\"--ub-button-background-color: #452d86; --ub-button-color: #ffffff; --ub-button-border: none; --ub-button-hover-background-color: #313131; --ub-button-hover-color: #ffffff; --ub-button-hover-border: none; padding-top: 10px; padding-right: 10px; padding-bottom: 10px; padding-left: 10px; border-top-left-radius: 10px;; border-top-right-radius: 10px;; border-bottom-left-radius: 10px;; border-bottom-right-radius: 10px;; \">\n\t\t\t\t<div class=\"ub-button-content-holder\" style=\"flex-direction: row\">\n\t\t\t\t\t<span class=\"ub-button-block-btn\">Go to the My IBD Journal<\/span>\n\t\t\t\t<\/div>\n\t\t\t<\/a>\n\t\t<\/div><\/div>\n\n<div class=\"gradient-divider\"><\/div><div class=\"sponsor-block\"><p><p style=\"margin-left:0px;text-align:center;\">My IBD Journal is brought to you by <a href=\"https:\/\/www.organon.com\/\">Organon.<\/a><\/p><\/p><div class=\"sponsor-details\"><div class=\"photo\" >\n<a target=\"_blank\" href=\"https:\/\/www.organon.com\"><img decoding=\"async\" class=\"lazyload\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2022\/11\/organon-logo.webp\"  \/><noscript><img decoding=\"async\" class=\"lazyload\" src=\"https:\/\/cdhf.ca\/wp-content\/uploads\/2022\/11\/organon-logo.webp\"  \/><\/noscript><\/a>\n<\/div>\n        <\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>The Canadian Digestive Health Foundation, in partnership with Organon, is excited to present My IBD Journal \u2014 an online journaling tool designed to help adolescents and young adults with Inflammatory Bowel Disease (IBD) manage their health as they transition from pediatric to adult care. This secure platform allows you to take control of your healthcare [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":57829,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"cdhf2022_sponsors_meta":[],"footnotes":""},"categories":[60],"tags":[52],"class_list":["post-57816","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-article","tag-tags-ibd"],"acf":{"article_writer":[101]},"featured_image_src":"https:\/\/cdhf.ca\/wp-content\/uploads\/2024\/09\/Banners-for-Website-Size-90.webp","author_info":{"display_name":"Kelsey Cheyne","author_link":"https:\/\/cdhf.ca\/en\/author\/kelsey-cheyne\/"},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>CDHF\u2019s My IBD Journal\u00a0 - Canadian Digestive Health Foundation<\/title>\n<meta name=\"description\" content=\"The myIBD journal is a secure platform that allows you to maintain a detailed, private record of your medical history and personal experiences with IBD.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cdhf.ca\/en\/cdhfs-my-ibd-journal\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"CDHF\u2019s My IBD Journal\u00a0 - 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